{"id":14821,"date":"2018-09-10T10:05:36","date_gmt":"2018-09-10T10:05:36","guid":{"rendered":"https:\/\/findinglife.ca\/?page_id=14821"},"modified":"2019-01-23T14:59:18","modified_gmt":"2019-01-23T14:59:18","slug":"climbforalbinism","status":"publish","type":"page","link":"https:\/\/findinglife.ca\/climbforalbinism\/","title":{"rendered":"Climb for Albinism"},"content":{"rendered":"
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Expedition Introduction<\/span><\/a><\/div>\n
Meet the Climbers and Support Team<\/span><\/a><\/div>\n
Story Maps: Illustrating Our Progress<\/span><\/a><\/div>\n<\/div><\/div>
Expedition Introduction<\/div>
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People with albinism often face deep seated, sometimes deadly discrimination, especially in Africa.\u00a0 Often, they do not have the same opportunities for safety, education, health care and a future as others. Superstition and mistaken beliefs about albinism fuel this unequal treatment.<\/p>\n

This October a team of six African women with albinism are climbing Mount Kilimanjaro to demonstrate that they are powerful, capable and inspirational role models to women around the world.<\/p>\n

You are invited to join this special journey as the climbers makes their way towards Africa’s highest peak. This website has been created to allow you to follow the team’s progress through video updates, interactive maps, blog posts, photos, 360 images, and more. You can even sent the climbers questions and will be provided opportunities to interact with them during the climb.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div>

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THE GOALS OF THIS EXPEDITION:<\/h3>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div>
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SUMMIT MT. KILIMANJARO<\/div>\n

Mount Kilimanjaro in Tanzania has been conquered by thousands of climbers, but never by a team like this. In September 2018, with the support and leadership of Elia Saikaly and his team at FindingLife, our team of African women with albinism will climb to the highest peak on the continent.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n\r\n\t

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CREATE A GLOBAL AWARENESS CAMPAIGN<\/div>\n

The climb is a global platform to amplify our voices from Africa\u2019s highest peak to challenge the stigma associated with albinism. We will be speaking not just for ourselves but also for the future generations of people with albinism, so that they may be given equal opportunities, dignity and respect.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div>

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SHARE OUR JOURNEY WITH THE WORLD<\/div>\n

Our campaign includes the creation of a documentary, real-time social media content produced from the mountain, live hits, a fundraising campaign supported by our charitable partners and a shared experience with the public on via traditional social media channels.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n\r\n\t

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EMPOWER OTHERS TO DO THE SAME<\/div>\n

Despite the hardship many have faced we are powerful, capable and inspirational role models to women around the world. Simply by being women with albinism living in Africa, we have climbed mountains before. Now we are conquering Mount Kilimanjaro to open limitless doors and show others that they can do the same.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div>

Meet the Climbers and Support Team<\/div>
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The Climbers<\/div>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div>
\"Jane<\/div>

Jane Waithera<\/span><\/h4>
Kenya<\/div>
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JANE WAITHERA<\/div>\n
Project Co-Creator<\/div>\n

Jane Waithera is a Kenyan activist and change agent, whose work centers on persons with albinism in education and advocacy. She is also the co-creator of Climb for Albinism.<\/p>\n

Jane did not have an easy start to life. Her mother abandoned her as a toddler, because she was born with albinism. Her grandmother, who did her best to create a supportive and healthy environment in their rural farming community, raised her. However, beyond her grandmother\u2019s home, Jane was constantly bothered, insulted and excluded in her village. This drove her to be depressed, and at times suicidal.<\/p>\n

Jane\u2019s experiences have inspired her to be a catalyst in promoting inclusion, and improving the living conditions of Persons With Albinism in East Africa. She previously worked for Under the Same Sun in Tanzania, and now heads albinism awareness projects for Positive Exposure from Nairobi, Kenya. Her work has been recognized across the globe, in 2017, Jane was selected to be part of the Mandela Washington Fellowship for Young African Leaders. She has spent 2 years planning the Climb for Albinism, and will continue her advocacy efforts beyond the climb<\/p>\n

https:\/\/www.youtube.com\/watch?v=zzUu8BsrO0g<\/div>

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\"Mariam<\/div>

Mariam Staford<\/span><\/h4>
Tanzania<\/div>
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Mariamu Staford<\/div>\n
Climber<\/div>\n

Mariamu Staford is an entrepreneur and vocal albinism activist from Tanzania. She grew up with supportive family and friends, but was bullied in school because of her albinism. Some classmates even feared her, due to societal misconceptions about albinism. Her low vision made reading a challenge, which increasingly discouraged Mariamu. By age 12, she was continually skipping classes, and eventually dropped out of school. She became a helping hand on her family\u2019s small farm from then on.<\/p>\n

On October 17 2008, 28 year old Mariamu was brutally attacked by criminals who entered her home while she and her infant son slept. Both her hands were cut off, and she had to spend many weeks in hospital, and years recovering from the traumatic incident.<\/p>\n

ith help from Under the Same Sun, and a generous donation of prosthetic arms, Miriamu was able to attend a vocational boarding school. Since graduating, she started her own knitting business, while continuing to upgrade her skills by taking additional courses in commercial knitting and sewing. She makes and sells shawls, sweaters, skirts and dresses, which she makes on a commercial loom. Mariamu is still furthering her activism work and has in the past spoken on albinism issues at the United Nations, and for Under the Same Sun. <\/div>

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\"Nodumo<\/div>

Nodumo Ncomanzi<\/span><\/h4>
Zimbabwe<\/div>
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Nodumo Ncomanzi<\/div>\n
Climber<\/div>\n

Nodumo Ncomanzi is a Zimbabwean educator, brand strategist and creative, who is currently working from Kenya, and traveling around Africa.<\/p>\n

Nodumo grew up in a supportive home, but her albinism was a difficult topic for her family to discuss and acknowledge. She was also subjected to bullying in school, and public harassment and insults, which made her feel isolated, and removed from her society. As a college student and working adult, Nodumo has experienced prejudice in many forms while traveling in different parts of the world.<\/p>\n

Nodumo recently graduated with from Yale University, where she got a full scholarship to study Political Science and African Studies. Since 2017, Nodumo has been running a creative consulting firm, where she connects young emerging creatives to diverse opportunities. She has also been the director of a youth empowerment program, which helps smart high school graduates apply to internationally renowned schools. Nodumo works in communications under the United Nations Independent Expert on albinism, and has contributed to the development of actiononalbinism.org; a monitoring platform for albinism advocacy in Africa. <\/div>

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\"Regina<\/div>

Regina Mary<\/span><\/h4>
South Africa<\/div>
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Regina Mary<\/div>\n
Climber<\/div>\n

29 years old, Regina Mary is revolutionizing her life. Her vision impairment due to albinism was a hindrance to her education and she was passed through the South African education system without learning the basics of how to read and to write.<\/p>\n

Yet she knew in her heart that she had a mission and purpose to help those who were similarly suffering from discrimination and abuse.<\/p>\n

Using social media tools that transferred voice into text she wrote the story of her childhood sexual abuse and bullying into a play, \u201cMary, Mary, Mary\u201d which debuted at the Johannesburg Theatre complex. An audience member was so moved that she arranged for Regina Mary to receive intensive educational tutoring. After a few months, her competency was so accelerated that she was accepted into a University-based drama programme.<\/p>\n

The revolution began. Now Regina Mary is an accomplished actress, using her fierce talent and forceful determination to educate the nation about albinism. Over the past 6 years she has been performing in a play \u201cMama I Want the Black that You Are\u201d which highlights the coming of age challenges of a young woman with albinism. She performed the play in the National State Theatre and has recently (September 2018) completed a national school tour as lead actress performing to thousands of youth. <\/div>

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\"Maah<\/div>

Maah Koudia Keita<\/span><\/h4>
Senegal<\/div>
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Maah Keita<\/div>\n
Climber<\/div>\n

Maah Koudia Keita is a Senegalese musician and activist. She is recognized as 1 of only 3 women bass-guitar players in Africa.<\/p>\n

Since 2006, Maah has been the bassist for the band \u201cTakeifa\u201d, which is made up of herself and her four siblings. Under the band, Maah has recorded 3 albums, and toured Senegal, and Europe. She is also the co-founder of the association \u2018Care Albinos\u2019, an albinism awareness and support organization based in Senegal. Since it was formed in 2012, \u201cCare Albinos\u201d has also provided necessary resources and medical assistance to persons with albinism afflicted with skin cancer. Maah has been at the forefront of albinism awareness initiatives in West Africa run by the United Nations, and Open Society West Africa.<\/p>\n

https:\/\/www.youtube.com\/watch?v=BTe-Uy0XZOs<\/div>

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\"Dr.<\/div>

Dr. Edi<\/span><\/h4>
Nigeria<\/div>
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Dr. Onyinye Edi<\/div>\n
Climber<\/div>\n

Dr Onyinye Edi is an optometrist and entrepreneur from Nigeria. She runs a successful eye clinic in Lagos.<\/p>\n

As a child with albinism, Onyinye was an easy target for bullies. She would often be called derogatory names, and harassed by other children in school. Fortunately, her family and friends provided her with a happy and supportive upbringing. Her parents even made a lasting arrangement with her school for Onyinye to sit at the front of the class, closest to the blackboard so she could see.<\/p>\n

While studying optometry, Onyinye would often struggle to complete some of the delicate procedures. Undeterred, she would then device simpler ways to complete each difficult task, and consequently, she was the clinician vice president by the time she graduated.<\/p>\n

Onyinye has worked as a volunteer for the Albino Foundation in Nigeria for 11 years, and has also completed projects for children with albinism under Standing Voice. She is passionate about using her story and skillset to champion albinism advocacy across Africa. <\/div>

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\"Elia<\/div>

Elia Saikaly<\/span><\/h4>
Team Leader<\/div>
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Elia Saikaly<\/div>\n
Team Leader<\/div>\n

Elia Saikaly<\/strong>\u00a0is an award-winning filmmaker whose global adventures inspire others to find their most meaningful lives and spark positive change. He’s been to the summit of Mt. Everest twice, on the mountain 7 times and has taken part in over 16 Himalayan Expeditions.<\/p>\n

\u201cSince I met Jane in 2016 and learned about her story and the injustices and crimes committed against these men, women and children, I have been working tirelessly to bring this vision to life.<\/p>\n

A Climb for Albinism<\/strong>\u00a0is an empowerment campaign, not only for Jane and her team, but for thousands of others like Jane who are born with albinism. All too often they are portrayed as victims. We plan on breaking that stereotype by\u00a0doing something that\u2019s never been done before. We will demonstrate to the world that despite the hardship many of these women have faced that they are powerful, capable and inspirational role models to women around the world. Kilimanjaro has been climbed, but never quite like this.<\/p>\n

Our project is a multi-tiered media campaign that draws from over a decade of experience creating expeditions and real-time content from the world\u2019s tallest peaks for some of the most reputable broadcasters and brands such as Discovery, Google and UnderArmour. This isn\u2019t just a climb, it\u2019s an immersive experience for audiences around the world.<\/p>\n

Our plans include the creation of a documentary by an award-winning team, real-time social media content produced from the mountain, live hits, a fundraising and awareness campaign supported by our charitable partners, a shared\u00a0educational campaign with students in schools on an innovative new social media network and an overall experience that will engage, inspire, transform perceptions and move our audiences into action.<\/p>\n

We look forward to sharing this incredible journey with you.<\/p>\n

Elia Saikaly<\/strong>
\nwww.eliasaikaly.com<\/a><\/strong><\/div>

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Our Filmmakers and Support Team<\/div>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div>
\"Anthony<\/div>

Anthony Gordon<\/span><\/h4>
High Altitude Camera Operator<\/div>
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LEARNMORE<\/span><\/a>
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Anthony Gordon<\/div>\n
High Altitude Camera Operator<\/div>\n

Well, we are super excited to announce that Anthony (Gordo) Gordon, the founder and creative genius behind \u2018Nothin But Shorts\u2019 has come aboard as an integral part of the media team.<\/p>\n

The art of storytelling is made complete by wonderful technology, never-ending enthusiasm and most importantly the ability to cost-effectively and efficiently deliver in today\u2019s digital and mobile environment.<\/p>\n

Gordo spends his life travelling the world capturing the most amazing sports footage and stories. From Mt Everest to the Oman Dessert there is no story that has been left untold.<\/p>\n

www.nothinbutshorts.com.au<\/div>

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\"Garry<\/div>

Garry Tutte<\/span><\/h4>
High Altitude Camera Operator<\/div>
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Garry Tutte<\/div>\n
High Altitude Camera Operator<\/div>\n

Garry is a documentary filmmaker based in Toronto, Canada. To date he has worked in over 50 countries chasing stories and imagery that inspire others to get out and experience our world firsthand.\u00a0His past exploits include:\u00a0documenting\u00a0a 3000km car rally across the Sahara Desert in a used $500 vehicle and photographing remote communities along the banks of the\u00a0magical\u00a0Amazon River.<\/p>\n

Recently\u00a0he led the media team aboard the Canada C3 expedition, producing and sharing real-time content from an icebreaker as it circumnavigated Canada\u2019s entire 23,000 km coastline via the famed Northwest Passage.<\/p>\n

www.garrytutte.com<\/a><\/div>

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\"Rebecca<\/div>

Rebecca Kammer, OD, PhD<\/span><\/h4>
Optometrist - Climbing support team<\/div><\/div><\/div>
LEARN MORE<\/span><\/a>
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Photo by Matt Breneman \/ allseasonphoto.com<\/p><\/div>\n

Rebecca Kammer, OD, PhD<\/div>\n
Optometrist – Climbing support team<\/div>\n

Dr. Kammer doesn\u2019t shy away from challenges. As a low vision specialist from California, she makes time to go to Tanzania at least twice a year to help children with albinism. While they face the same vision issues that other people with albinism do, there is a higher incidence of albinism there, and they are at risk because of social discrimination and dangerous superstitions about their condition. Dr. Kammer helps children and adults get the vision care they need by training doctors and directing an eye care program with UK based NGO, Standing Voice.<\/p>\n

Back in the States, Dr. Kammer works to improve low vision patients\u2019 quality of life. After years as an educator and administrator at optometry colleges, she began a consulting business supporting clinical studies for inherited eye diseases. She also assists companies that develop innovative low vision devices aimed at enhancing vision. With her unique low vision knowledge, she supports the development of treatments for blinding eye diseases but also works to improve rehabilitation methods when treatments are unavailable.<\/div>

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Story Maps: Illustrating Our Progress<\/div>
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This is the expedition’s primary progress map which tracks the climbiers progress towards the summit.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div>[vc_empty_space height=”50px”]

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Mount Kilimanjaro with its three volcanic cones, “Kibo”, “Mawenzi”, and “Shira”, is a dormant volcano in Tanzania.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n[vc_empty_space height=”40px”]<\/div><\/div><\/div>

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Follow along as Elia visits with the climbers in their home countries as they prepare for the expedition.<\/p>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n[vc_empty_space height=”40px”]<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/section>

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Video Blog from the Mountain<\/div>\n
These are video updates from the team as they ascend Mount Kilimanjaro.<\/div>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n[vc_empty_space height=”15px”]
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Updates From the Team<\/div>\n
Follow the climbers as they progress toward the summit through frequent updates, new photos, videos, and blog posts.<\/div>\n\r\n\t\t<\/div>\r\n\t<\/div>\r\n<\/div><\/div><\/div><\/div><\/div><\/section>
Timeline<\/span><\/a><\/div>\n
Blog<\/span><\/a><\/div>\n
Route Map<\/span><\/a><\/div>\n
Photos<\/span><\/a><\/div>\n
360 Images<\/span><\/a><\/div>\n
Educator Resources<\/span><\/a><\/div>\n<\/div><\/div>
Timeline<\/div>
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Blog<\/div>
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